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Patient Data Sharing Preferences

Sharing your medical record

Quick Start Patient guide to sharing

The person who gave you this leaflet uses computer software, called SystmOne, which is used widely across the NHS and by many care organisations throughout Leicestershire, in order to maintain accurate medical records about you.

These records store important and often sensitive, confidential, information about your health and the care you have received in the past. Your record may contain information from various health and social organisations, especially if your needs are complex. These may include records from urgent care settings or the physiotherapy service you may have attended.

Organisations can access your medical record if you give them permission. This is likely to benefit the care you receive. You may choose to decline to have your information shared in this way but this could affect the quality of care you receive. You may change your mind about sharing at any time. Organisations using SystmOne only access your record when they are involved in giving you care.

We aim to ensure that your choices about how your information is shared are respected.

We will ask you to give us your preferred mobile phone number or email address which will be recorded on your medical record. This means that when organisations, not close to your home, ask to access your record, we can send you a verification (security) code which allows you to choose whether to let that organisation access your medical record or not. You can also set this using the SystmOnline portal.

If you do not have a mobile phone number or email address and don’t use SystmOnline, then your GP practice will be able to record your choices for you.

When you receive care close to your home (in Leicestershire) you will not usually need to give a verification (security) code but you should still be asked about what your choices are about record sharing.

For example you may be working or on holiday in another part of the country and need care from a hospital, urgent care settings or clinic. Having access to your whole medical record will benefit the care they can provide you. It should allow for better care being provided if the healthcare worker can access your full medical record.

If you would like to read more about SystmOnline please go to:

 

Patient Leaflet-eDSM

SystmOnline-Sharing Preferences

GPDPR-National Data Opt Out-Your Choice

Your Data Matters

Choose if data from your health records is shared for research and planning

 

From the 1st July, the NHS will change how it shares your GP medical record. The General Practice Data for Planning and Research data extract by NHS Digital from GP Practices across England will help the NHS to improve health and care services for everyone, by collecting patient data and holding it in a central national database.

This is an upgrade to an existing similar process called GPES – General Practice Extract Service, this new data collection will be more efficient, effective, and much more frequent.

For example, patient data held in this new national database can help the NHS to:

•    monitor the long-term safety and effectiveness of care

•    plan how to deliver better health and care services

•    prevent the spread of infectious diseases

 

    identify new treatments and medicines through health research

As a practice we are legally required to share this data unless the patient opts out. We must also be clear and transparent with our patients about how their data is handled and shared. There is growing concern that the general public remain largely unaware of this significant change, which is due to come into effect on 1st July 2021. We want to alert you to this change to allow you to think about your options and consider whether you wish to opt out of this data sharing.
Everything that you need to know about the new process, including how to opt out can be found here.
https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research?fbclid=IwAR31fBH32pM5GOx03MfmE42Wl-ROUb0wVHZrziQrf-mcrZ1JQ17aBVZlBLg#main-content
Please ensure you are getting your information regarding this from genuine sources - there is a link here to some myths:

If you wish to opt out then either print off the form below and hand it in to reception/post it back to Forest House Surgery by the 23rd June 2021 or pick up a form at the rception desk.

TYPE 1 NATIONAL OPT OUT FORM

Privacy Notice

All GP practices in England are legally required to share data with NHS Digital for this purpose under the Health and Social Care Act 2012 (2012 Act). More information about this requirement is contained in the data provision notice issued by NHS Digital to GP practices. You have the choice to opt out if you wish to you need to complete the attached form and send this to your Practice.  You can learn more about how NHS Digital uses your data here: General Practice Data for Planning and Research: GP Practice Privacy Notice - NHS Digital

 

 

 

 

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