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Patient Data Sharing Preferences

Sharing your medical record

Quick Start Patient guide to sharing

The person who gave you this leaflet uses computer software, called SystmOne, which is used widely across the NHS and by many care organisations throughout Leicestershire, in order to maintain accurate medical records about you.

These records store important and often sensitive, confidential, information about your health and the care you have received in the past. Your record may contain information from various health and social organisations, especially if your needs are complex. These may include records from urgent care settings or the physiotherapy service you may have attended.

Organisations can access your medical record if you give them permission. This is likely to benefit the care you receive. You may choose to decline to have your information shared in this way but this could affect the quality of care you receive. You may change your mind about sharing at any time. Organisations using SystmOne only access your record when they are involved in giving you care.

We aim to ensure that your choices about how your information is shared are respected.

We will ask you to give us your preferred mobile phone number or email address which will be recorded on your medical record. This means that when organisations, not close to your home, ask to access your record, we can send you a verification (security) code which allows you to choose whether to let that organisation access your medical record or not. You can also set this using the SystmOnline portal.

If you do not have a mobile phone number or email address and don’t use SystmOnline, then your GP practice will be able to record your choices for you.

When you receive care close to your home (in Leicestershire) you will not usually need to give a verification (security) code but you should still be asked about what your choices are about record sharing.

For example you may be working or on holiday in another part of the country and need care from a hospital, urgent care settings or clinic. Having access to your whole medical record will benefit the care they can provide you. It should allow for better care being provided if the healthcare worker can access your full medical record.

If you would like to read more about SystmOnline please go to:


Patient Leaflet-eDSM

SystmOnline-Sharing Preferences

Your Data Matters

Choose if data from your health records is shared for research and planning

National Data Opt Out

National Data Opt Out

In May 2018, the strict rules about how this data can and cannot be used were strengthened. The NHS is committed to keeping patient information safe and always being clear about how it is used.

How your data is used

Your health and care information is used to improve your individual care. It is also used to help us research new treatments, decide where to put GP clinics and plan for the number of doctors and nurses in your local hospital. Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information

What is confidential patient information?

Confidential patient information identifies you and says something about your health, care or treatment. You would expect this information to be kept private. Information that only identifies you, like your name and address, is not considered confidential patient information and may still be used: for example, to contact you if your GP practice is merging with another.

Who can use your confidential patient

It is used by the NHS, local authorities, university and hospital researchers, medical colleges and pharmaceutical companies researching new treatments.

Making your data opt-out choice

You can choose to opt out of sharing your confidential patient information for research and planning. There may still be times when your confidential patient information is used: for example, during an epidemic where there might be a risk to you or to other people’s health. You can also still consent to take part in a specific research project.

Will choosing this opt-out affect your care and treatment?

No, your confidential patient information will still be used for your individual care.


Choosing to opt out will not affect your care and treatment. You will still be invited for screening

services, such as screenings for bowel cancer.

What should you do next?

You do not need to do anything if you are happy about how your confidential patient information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your choice at any time by visiting: (this link will open in a new window - popups must be allowed) or telephone 0300 303 567






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